Brain health – time matters 2024: MS, NMOSD, MOGAD and related conditions
With the launch of the ‘Brain Health – Time Matters’ report, we aim to advance global care and support for individuals with MS, NMOSD, and MOGAD and their families. It has been authored in collaboration with: Helmut Butzkueven, Gavin Giovannoni, Sofia Arkelsten, Giancarlo Comi, Kathleen Costello, Michael Devlin, Jelena Drulovic, Emma Gray, Jodi Haartsen, Anne Helme, Jana Hlaváčová, Yaou Liu, Thomas Mathew, Saúl Reyes, Jérôme de Seze and Mitzi J Williams, with over 45 other participants from across different fields of expertise contributing within subject matter working groups, with support from F. Hoffman-La Roche Ltd, Multiple Sclerosis Society and Horizon, now part of Amgen.
Since our first publication in 2015, care and treatment in neuroimmune conditions have hugely advanced. This new report delves into these advancements and addresses the ongoing needs of those living with these lifelong conditions. MS, NMOSD, and MOGAD are related, chronic, incurable diseases that can severely impact many aspects of life, especially when undiagnosed, misdiagnosed, or not treated early and effectively. Owing to this, expanding the scope of the report to include rare neuroimmune conditions may enable wide-reaching impact and improvements.
We are dedicated to achieving better outcomes through advancements in care and improved equitable access to it. The new ‘Brain Health – Time Matters’ report emphasizes the importance of timely diagnosis and treatment initiation to enhance health outcomes, holistic person-centred care, and the consultation of robust, emerging evidence in this evolving research area. These principles form the foundation of our recommendations and are crucial for improving the lives of those affected by MS, NMOSD, and MOGAD.
We encourage you to explore our findings and recommendations. Let’s move beyond ‘if only’ and seize opportunities for meaningful change!
The message to all nations, policymakers, payers, and healthcare professionals is clear: strive for excellence, but most importantly, start somewhere!
